Hearing you have PV can be overwhelming, upsetting and hard to understand.
It is important you know that:
There is hope
Treatment for this type of blood cancer can lead to relief from symptoms and an improved quality of life.
Research is advancing
Our understanding of this disease has progressed in recent years.
It’s nothing you did
You did not catch the disease from someone else and cannot pass it to your children.
You are not alone.
Know that the blood cancer community is here to support you every step of the way.
What happens next?
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Talking to family and friends
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Telling your children
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Speaking with your employer
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Preparing for appointments
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Understanding lab results
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Asking for a second opinion
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Coping with fear, anxiety and stress
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Taking care of your body
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Managing fatigue and cognitive challenges
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Understanding insurance and organizing finances
Experiences of others with Polycythemia Vera
Resources on PV
Polycythemia Vera
Learn about PV, how it is diagnosed, an overview of treatments and what happens next.
Understanding clinical trials
Get an overview of clinical trials, understand them, how they are planned, evaluate benefits and risks of participating, address concerns and what to ask.
Types of blood cancer treatments
You or your loved one has been diagnosed with a type of blood cancer. Cancer treatment can be complex, with different types of treatment options available for some blood cancers. What are they and how do they work? This fact sheet will help you Learn about the different treatment options available, Understand each type of treatment and how it can help, Prepa…
Understanding Genetics
Genetics plays an important role in understanding cancer and treatments for cancers. What is genetics and how is it involved in cancer?
Shared Decision Making: Discussion tool for people with a blood cancer
You or your loved one has been diagnosed with a type of blood cancer. You will be making important decisions with your healthcare team.
Living with Polycythemia vera – A Conversation with Joanne McKinley
Joanne was diagnosed with Polycythemia vera in 2012. She shares her experience with her diagnosis, the support she received from local groups and how it has changed her life.
All resources
Access all fact sheets, guides, podcast, videos and other resources to learn everything from disease symptoms, statistics and treatment options.