Hearing you have ET can be overwhelming, upsetting and hard to understand.
It is important you know that:
There is hope
Most people with this disease can expect a normal or near normal life expectancy.
Research is advancing
Our understanding of this disease has progressed in recent years.
It’s nothing you did
You did not catch the disease from someone else and cannot pass it to your children.
You are not alone.
Know that the blood cancer community is here to support you every step of the way.
What happens next?
Banner Image
Talking to family and friends
Banner Image
Telling your children
Banner Image
Speaking with your employer
Banner Image
Preparing for appointments
Banner Image
Understanding lab results
Banner Image
Asking for a second opinion
Banner Image
Coping with fear, anxiety and stress
Banner Image
Taking care of your body
Banner Image
Managing fatigue and cognitive challenges
Banner Image
Understanding insurance and organizing finances
Experiences of others with essential thrombocythemia
Resources on ET
Essential Thrombocythemia
Learn about ET and how it is diagnosed, monitored and managed. Learn about a related disease (smoldering multiple myeloma).
Types of Blood Cancer Treatments
You or your loved one has been diagnosed with a type of blood cancer. Cancer treatment can be complex, with different types of treatment options available for some blood cancers. What are they and how do they work? This fact sheet will help you Learn about the different treatment options available, Understand each type of treatment and how it can help, Prepa…
Understanding Genetics
Genetics plays an important role in understanding cancer and treatments for cancers. What is genetics and how is it involved in cancer?
Shared Decision Making: Discussion Tool for People With a Blood Cancer
You or your loved one has been diagnosed with a type of blood cancer. You will be making important decisions with your healthcare team.
Molecular Profiling for cancer
Learn about molecular profiling, get to know the benefits, understand how it works and what it means for you.
Understanding essential thrombocythemia (ET): Diagnosis, treatments and follow-up care
In this 1-hour webcast, Dr. Lynda Foltz, University of British Columbia, will review this type of myeloproliferative neoplasm (MPN): its diagnosis, treatment options, and aspects of follow-up care.) People with ET have too many platelets, a type of blood cell. Too many platelets can result in a blood clot (thrombosis) forming in a blood vessel.
All resources
Get the information you need, in the format that works for you - from symptoms and side effects to treatment options and next steps.